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World Hearing Day: My Cochlear Implant Story

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Tuesday 3 March is World Hearing Day. To mark the occasion and raise awareness, Opencast Junior Software Developer John Owens has written about his experience of deciding whether to have cochlear implants. He takes us through how he made his decision, his surgery, his recovery and how he feels about it now.

Introducing John

I’m John Owens, a Junior Software Developer. I’ve been with Opencast for almost 4 years this September (2026). I’ve been profoundly deaf since birth, almost 47 years ago. I can speak and know some British Sign Language (BSL), but I'm not fluent enough to hold a conversation in BSL.

A man with short hair and glasses wearing a light blue shirt smiles in front of a white background
A man with short hair and glasses wearing a light blue shirt smiles in front of a white background
A hearing aid photographed on a wooden surface

Decision

In early 2023, I was considering getting a cochlear implant, and this meant having surgery. Since I was a child, I’ve worn hearing aids. Hearing aids sit on top of your ears, with tubing and an earmould going inside your ear. This amplifies sound from the hearing aid to the eardrum. With the cochlear implant, this would bypass the eardrum and feed the sound directly to the auditory nerves next to your ear.

There were a few risks and concerns about having this surgery.

  • Having surgery would destroy any residual hearing you have left in that ear. If the cochlear implant fails, there’s no way of returning to your previous hearing levels.

  • When it comes to switching on the cochlear implant (activation) for the first time, there’s no guarantee it would work straight away. For some deaf people, they can hear sounds when the cochlear implant is activated. For others, it may not work straight away. It could take time. Apparently, your brain is still learning to process new sounds from the implant. I was told that for some deaf people, it can take up to a year.

  • After surgery, I would have to take time off work for recovery. I would be unable to drive. It would be 4-6 weeks before the audiologist could activate my cochlear implant. I could still wear my hearing aid on my other ear.

I decided to go ahead with this, even though I was conscious about the risk of a failed cochlear implant. It can happen. I’m profoundly deaf in both ears. I have some residual hearing, more in my right ear than my left. I was conscious about this risk, which is why I opted to use my left ear for my cochlear implant.

I discussed this with my GP and I got a consultation at a hospital in Kilmarnock, Scotland where they specialise in cochlear implant technology and surgery. It happened really quickly. It was only a few months until I went for surgery.

Surgery

My brother, Gerard, took me to Crosshouse Hospital in Kilmarnock on the day of surgery. I had to put on a gown and some pyjama bottoms. Before I was taken into surgery, I was asked the same questions by several nurses: what’s your name, your date of birth, which ear you’re having surgery on, how I was feeling. I didn’t mind being asked the same set of questions because it was important they work on the correct ear. The doctor drew a marker pen on the side of my neck, drawing an X. I felt assured they knew what they were doing.

When I was on the patient trolley waiting to be taken into the surgery room, they administered general anaesthesia. As I went under, I felt it was peaceful. Everything was bright white until I was out for the count.

When I came to, I was moved into a large room with other patients, in separate cubicles, who were in surgery for different reasons. Not necessarily for a cochlear implant. I was feeling hungry, and I asked for tea and toast. That was a mistake, as I became sick. It was too soon to eat after surgery. Toast and surgery medication didn't mix well.

The next day, Gerard took me home, and I had to rest for a few weeks. I was told not to sleep on my left side to allow the stitches to heal and not to wash my head during my shower. At the time, I had short hair, so my stitches were visible. It was uncomfortable sleeping with a sore ear.

Recovery and Activation

Post surgery

I would go back to the hospital several times to tweak the sound levels in my cochlear implant processor. Over the course of a year, I was starting to hear more, bit by bit. We experimented with different levels of volume and pitch of sound I can hear. I grew up listening to/feeling music. There was one time when I was listening to AC/DC’s “Back in Black”. When the first chords played, they were way too high-pitched. When the music was playing, it felt like listening to Donald Duck singing. It felt unnatural, and I knew I had to get my cochlear implant tweaked right away.

Subsequently, during my visits, the audiologist found there was a setting in my sound programme which dampened down everything I could hear. I told him to turn it off and I could hear a fan working behind me. This setting was the reason I couldn’t hear anything much in the first place. It had muffled everything I could hear. Now, I was happy that I could hear sounds with more clarity and I could start learning to hear.

A black cochlear implant external processor photographed on a wooden surface

Present

I’m still learning to hear and process sounds. On some days, I can work out what’s being said, and that’s mostly guesswork. For example, when I take the train to Glasgow, I can hear names of train stations being read out, before it gets shown on screen. I could figure that out because I knew the destinations by heart. I would listen out for familiar names. If I was taking a train to an unfamiliar place, I would rely on accessibility, like a display listing names of train stops, to tell me where we were.

I’m enjoying music as I did before, with my hearing aids. It took me a long time and some trial and error to adjust the sound levels. There’s some clarity where I can hear the words, only because I’m familiar with the songs. It doesn’t work when I hear a new song for the first time.

Despite having my cochlear implant, I struggled with group conversations in noisy environments like pubs, parties, or conferences. That was always the case for me in most of my life. I have a programme for my cochlear implant where I can switch off background noise and only hear conversations in front of me. It’s not perfect. Some parts of the conversations can get lost among the background noise. I find busy places with lots of noise to be overwhelming; I would seek out a quieter place. I can only stay in a busy place for a short time.

Over the past few years, I took “hearing aid” breaks, where I would not wear my cochlear implants for a few hours or even a whole day. I only did this when I was home. I often watch TV without sound now and then. I never did this before when I wore hearing aids. When I wore hearing aids, I always kept them on. With my cochlear implant, I occasionally take them off. I think to some degree, wearing cochlear implants can overwhelm and leave me tired on occasions.

An important note: I’m still deaf, even after having cochlear implant surgery. It’s not a cure. I still rely on accessibility; subtitles on my TV, captions in Teams, and transcripts from videos or podcasts.

That said, I don’t regret having a cochlear implant. I’ve learnt a lot about myself since having a cochlear implant. I would like to say thanks to Opencast for their patience and compassion during my cochlear implant surgery.


Published: March 2026.

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